ORCHID Annual Report 2023 - Flipbook - Page 4
She was promoted to Professor of Child Health Psychology in Cardiology, Critical Care and Transplantation
in the Institute of Cardiovascular Science at UCL in 2021 and visiting Professor at the University of Surrey
the same year.
Her current programme of psychosocial research and quality improvement projects includes three main
streams of work:
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Cardiorespiratory disease, critical care and solid organ transplantation
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Measurement and evaluation
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Patient reported experiences and outcomes in children with chronic and/or rare conditions.
Digital profile:
ORCiD ID: 0000-0002-4769-1211
Google Scholar: https://scholar.google.co.uk/citations?user=B9KFPaYAAAAJ&hl=en&oi=a
Dr Kate Oulton
Dr Kate Oulton is a children9s nurse who has worked at GOSH for over 20 years. This year
saw Kate take up a new role as Consultant Nurse for Family Engagement and Co-Production,
following 5 years as the Consultant Nurse for Learning Disabilities. Alongside this, Kate
continues to work as a Senior Research Fellow in ORCHID and is also seconded one day a
week as the Patient and Family Involvement Lead for the GOSH Children9s Cancer Centre.
Kate leads a programme of research focused primarily on holistic well-being of children and young people
with long term, complex and/or life-limiting or life-threatening health needs. She has a particular interest in
Learning Disabilities and Autism and reaching under-served communities.
Her main fields of research, scholarship and supervision include:
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•
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Health inequalities and equity of access to healthcare services
Experiences and outcomes of children and young people and their families
Childhood disability advocacy
Kate has particular expertise in the use of qualitive research methods. Principles of inclusion and coproduction underpin her work and she has a specific interest in using creative, participatory approaches to
engage families in the research process. Kate is also passionate about supporting nurses and allied health
professionals on their clinical academic journey.
She is the Co-Chair of the National Learning Disability Acute Liaison Network and a member of the British
Academy of Childhood Disability Strategic Research Group. This year Kate was a finalist for the RCN
Researcher of the Year Award and shortlisted for The Burdett Nursing Learning Disability Nursing Award.
Digital profile:
ORCiD ID: 0000-0002-5778-3849
Google Scholar: https://scholar.google.co.uk/citations?user=TeXRL9QAAAAJ&hl=en&oi=ao
Dr Lucy Alderson
Dr Lucy Alderson joined the ORCHID Senior Leadership Team in 2023 championing clinical
outcome research with a focus on AHPs and the wider group of Health Care Professionals.
Lucy9s Research journey has focused on the development and application of reliable and valid
functional outcomes in the clinical setting, with a special interest in gait and mobility.
The process of recording change in walking measurements to reflect the natural history of rare diseases,
and more importantly to demonstrate clinically significant change associated with novel therapeutics, is now
well established using the GOS-ICH gait centiles. These were developed as part of her post-doctoral work
and are now available in EPIC alongside growth centile charts.
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