ORCHID Annual Report 2023 - Flipbook - Page 37
Invited talks:
Wray J. Don't talk to me that way: communication during times of transition. 43rd Annual Meeting of the
International Society of Heart and Lung Transplantation, Denver, USA, April 2023
Wray J. Experiences of congenital heart disease and treatment - what have we learned from patients and
parents using online discussion forums? 56th Annual Meeting of the Association for European Paediatric
and Congenital Cardiology, Dublin, Ireland, May 2023
Conferences:
Alarilla A, Terrell K, Kelly P, Chesters H, Gibson F, Oldham G, Davies G, Wray J. Do we ask, can they tell?
Use of patient reported experience measures (PREMs) and patient reported outcome measures (PROMs)
in routine hospital care of children and young people: a scoping literature review. 7th UK Patient Reported
Outcome Measures (PROMs) Research Conference, Sheffield, UK, June 2023
Alderson L. Risk Factors and Natural History of Vincristine Induced Neuropathy on UKALL 2011: A
Randomised Controlled Trial of the Effect of Omitting Vincristine Pulses, American Society of Haematology,
San Diago, 10th December 2023
Gaskin K, Bowers C, Wray J. Leveraging technology for the assessment and monitoring of fragile infants
with complex congenital heart disease in the community. 8th World Congress of Pediatric Cardiology and
Cardiac Surgery, Washington, USA, August 2023
Layton S, Curtis S, Wray J, Biglino G. An art installation exploring the lived experience of pregnant women
with congenital heart disease. 8th World Congress of Pediatric Cardiology and Cardiac Surgery, Washington,
USA, August 2023
Nordlind A, Anderzen Carlsson A, Sundqvist A-S, Angeby K, Oldham G, Wray J, Almblad A-C. Cognitive
interviews for validating children's understanding of questionnaires. 5th Nordic Conference in Nursing
Research, Reykjavik, Iceland, October 2023
Oulton K, Pepper L, Bracy L, Carr L, Gibson F, Kiernan J, Nightingale R, Tuffrey-Wijne I, Wray J. The
development of a risk assessment instrument for supporting children and young people with Learning
Disabilities and/or Autism to feel safe and be safe in hospital. International Society for Quality in Health Care:
40th International Conference, Seoul, South Korea, August 2023
Wray J, Pagel C, Coats L, Chester AH, Kennedy F, Crowe S. Living with congenital heart disease – what
does 8good9 care look like to patients and families? 8th World Congress of Pediatric Cardiology and Cardiac
Surgery, Washington, USA, August 2023
Wray J, Brown K, Pagel C, Crowe S. Data that matter – what outcomes matter to patients with congenital
heart disease and their carers and which should be routinely measured? 8th World Congress of Pediatric
Cardiology and Cardiac Surgery, Washington, USA, August 2023
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