ORCHID Annual Report 2023 - Flipbook - Page 33
Research Faculty:
Jessica Russell
Study title: Developing and testing a toolkit of interventions to improve adherence to non-invasive ventilation
in children: a mixed methods study (The SPIRITUS study)
Co-PIs: Jessica Russell and Professor Jo Wray
January 2022 – October 2025
Summary: SPIRITUS is a mixed-methods study following the revised Medical Research Council framework.
We aim to identify the components of a toolkit of behavioural, educational and organisational interventions
to address some of the barriers to NIV adherence and evaluate the interventions9 feasibility and acceptability
to families. We also aim to identify appropriate outcome measures.
Project Aims:
Aim 1: to identify a range of theoretically informed educational, behavioural, organisational and/or
environmental interventions for a toolkit to use with children and young people requiring NIV and their
families.
Research questions
• What interventions exist to address adherence to NIV in children and young people?
• How effective are these identified interventions for improving children9s and young people9s NIV
adherence?
• In what contexts has improved adherence occurred?
Aim 2: to test the identified interventions to assess their feasibility and acceptability.
Research questions
• Are identified interventions acceptable to parents and children and young people?
• Are identified interventions feasible for parents and children and young people?
Outcome measures
Aim 3: to identify salient outcomes of NIV use and their metrics for children and young people and their
families
Research questions
• What outcomes do staff, parents and children and young people identify as important to measure the
impact of NIV use?
• What metrics should be used to measure these outcomes?
Digital Profile:
ORCID ID: 0000-0003-3194-412X
Grants:
NIHR Research for Patient Benefit
Conference presentations:
Russell J. Non-invasive ventilation for sleep disordered breathing: Parent recommendations for future care,
Oral Competition GOSH Conference, November 2023
33
