ORCHID Annual Report 2023 - Flipbook - Page 22
There are a range of practices and services offered to parents in terms of where their child9s body may be
cared for between the time of death and the funeral, and how much contact they are offered. Very little is
understood about this, leading to inadequate preparation of nurses and inequity in service provision.
This NIHR funded study aims to address these challenges specifically within the context of Children9s
Palliative
Care (where the death of a child is expected) with three main objectives:
1. To describe the post-death care services provided by NHS services in both acute and community settings
2. To understand the experience of both bereaved parents and nursing staff who support them in providing
care or having contact with the child9s body
3. To produce recommendations for practice and education to improve the quality of services and care after
death in Children9s Palliative Care.
Tara is completing this study as a PhD registered at the Institute of Child Health, UCL. Ethical approval was
awarded in July 2023 and Tara is currently collecting and analysing data.
Digital profile:
ORCID ID: 0000-0001-6154-1829
Conference Presentations
Kerr-Elliott T, Craig F. Talking with families when death is a likely outcome: a workshop. The Royal College
of Paediatrics and Child Health (RCPCH) conference, Glasgow, May 2023
Kerr-Elliott T, Bayliss J, Darlington AS, Oulton K, Gibson F, Craig F. Creative Approaches to Educating
the Children9s Palliative Care Workforce: Learning in the Affective Domain, European Association of
Palliative Care, Rotterdam, June 2023
Jisoo Kim
MRCPCH, MBChB
NIHR Clinical Doctoral Research Fellowship, Institute of Child Health/UCL
Study title: Investigating the modifiable psychosocial variables influencing access and outcomes after
kidney transplantation in children
Supervisors: Professor Stephen D. Marks, Professor Jo Wray
April 2020 – September 2024
Project Aims:
1. To evaluate the psychosocial factors that are actual or perceived barriers to paediatric renal
transplantation which may be associated with poor transplant outcome
2. To synthesise findings that would inform recommendations about which psychosocial factors would
potentially delay or facilitate access to kidney transplantation in CYP
The systematic review and phase 1 (qualitative) of the mixed-methods study have been completed. Phase
1 comprised interviews with young people with chronic kidney disease, their parents and health professionals
providing care to them. Following analysis of the interviews, questionnaires were selected for use in Phase
2, based on the themes that were identified in the interviews. The study steering group had a critical role in
approving the final questionnaire selection and Phase 2 is underway.
After a successful upgrade in October 2021, Ji Soo went on maternity leave at the end of 2021 and has
returned to her PhD studies in late-2022.The study is now online in 12 out of 13 paediatric nephrology centres
in the UK, Phase 2 recruitment has been completed and is now in the follow-up stage.
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