ORCHID Annual Report 2023 - Flipbook - Page 19
April 2018 – September 2025
Jo has worked in gastroenterology at GOSH since 2003, in endoscopy, parenteral nutrition and
neurogastroenterology. In her NIHR clinical academic fellowship she has been collaborating with UK
secondary care centres evaluating patient outcomes from the National PIPO (Paediatric Intestinal Pseudo
Obstruction) Diagnostic Service. Jo stepped down from as the AHP Co-chair for BSPGHAN (British Society
of Pediatric Gastroenterology, Hepatology and Nutrition) in 2023, but is still an active member of BSPGHAN9s
Research Working Group, and a reviewer for a peer reviewed nursing journal. ESPGHAN (European
SPGHAN) invited Jo to join the European committee to deliver the Summer School for AHPs in Florence in
2023.
The 8Living with PIPO9 Study:
PIPO is a rare bowel disease with high morbidity and mortality; it accounts for 50% of children listed for
bowel transplant in the UK. There is emerging evidence that some children/young people (CYP) who have
types of bowel surgery, or different dietary interventions, have reduced dependency on intravenous nutrition,
tolerate oral feeding and are surviving. The 8Living with PIPO9 study follows the nation cohort to investigate
the relationship between intervention and quality of life from the family perspective. The study is a long term,
multi-centre, follow-up cohort study. It has a four-phase sequential mixed-methods design:
Phase 1: Exploratory qualitative interviews with CYP and their families, identifying family outcomes
Phase 2: Qualitative analysis and questionnaire design of a national survey
Phase 3: Clinical, nutritional and Quality of Life (QoL) quantitative data collection
Phase 4: Quantitative analysis; identifying if there is a difference in QoL between those who have different
interventions.
Digital profile:
ORCiD ID: 0000-0001-9454-4591
Study impact:
Results will provide medical teams with evidence for decision making for newly diagnosed CYP –
determining optimal times to operate and whether dietary restrictions can delay intravenous feeding. Families
will also be able to accurately plan for their child9s education and future.
Invited talks
Brind J.
