Childhood Onset Survey 2022 Report - Flipbook - Page 2
Welcome to the 2022 survey of families experiencing childhood onset Hereditary
Spastic Paraplegia. We are pleased to share with you the highlights of what has
been reported by parents of children with HSP and adults who experienced
symptom onset before the age of 18.
This report is public and we encourage you to share it with the providers and
researchers in your child’s care community.
-Ece Filiz efiliz@gmail.com
-Bridget Lassig bridget.lassig@gmail.com
Who implemented the Survey….
Why was the Survey done….
It’s been our observation that a great deal of information is shared
anecdotally and we wanted a means to capture the perspectives of
parents, help connect people, and share the trends with researchers to
encourage broader awareness.
1
