Childhood Onset Survey 2022 Report - Flipbook - Page 17
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University of Florida, Clinical and Translational Science Institute
University of Florida, Movement Disorders
University of Kansas-SEALS
University of Michigan Medicine, Adult Neurology
ANZAC Research Institute"
Valley Children's Hospital
Washington University in St. Louis, "Answer ALS"
Again, we encourage you to share this report with your child’s provider(s) to
help increase awareness of Childhood Onset HSP. To repeat…. The
average time difference between first sign of symptoms and
diagnosis is 6 years. Let’s educate broadly to get this number lower!
Links
Survey…
NH Study…
Seq Study…
Our Contact
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