Childhood Onset Survey 2022 Report - Flipbook - Page 16
What is being done to share this information?
In addition to sharing this Public Report through social media and to all who
participated, a more detailed report is being made available to the many
researchers dedicating their work to understand and develop therapies for
HSP. This list includes but is not limited to:
Australia
● Griffith University, Queensland
● Murdoch Children's Research Institute, RDNow Program
● University of Sydney, Concord Clinical School
Estonia
● Tartu ülikooli kliinikum
France
● SPATAX in Paris
Italy
● Stella Maris Foundation
United Kingdom
● 100,000 genome project, University college hospital
● Sheffield Childrens Hospital
● University of Exeter
United States
● Albert Einstein College of Medicine, Brain Study
● Atlantic Health Systems; Pediatric Neurology
● Boston Children's Hospital, Natural History Study/Genomic
Sequencing
● Columbia University
● Drexel University
● Massachusetts General Hospital, Movement Disorder Clinic
● National Hospital for Neurology & Neurosurgery, Queen Square,
● NIH: Undiagnosed Disease Program & Rare Disease
● Northwestern University
● Scottish Rite Hospital
● St Louis University Hospital
● Texas Scottish Rite Children's Hospital
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