AISP Toolkit Feb25 2025 - Flipbook - Page 50
Unavailable Data
The Urban Institute, Creating a Fully Synthetic Data Set
CENTERING RACIAL EQUITY THROUGHOUT THE DATA LIFE CYCLE
Gabe Morrison, Geoffrey Arnold, Kathryn Collins, Joanne Foerster, David Walker, Claire Bowen,
Robert Gradeck, & Alena Stern
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Allegheny County Department of Human Services (DHS) holds highly protected data, which is
typically restricted, suppressed altogether, or released only in aggregate. While these measures
protect individual privacy, they can also limit data use for research. In 2023, DHS developed a fully
synthetic dataset in order to both preserve protections and dig deeper into relevant questions about
service impact, such as interaction effects between identities, overlaps in program participation,
and continuation of service use from month to month.
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Resources: Data Access
Data User Guides, 2024, Western Pennsylvania Regional Data Center
Disaggregation of Public Health Data by Race & Ethnicity: A Legal Handbook, 2022, Network
for Public Health Law
FAIR Principles, 2016, GOFair
Five Safes Framework, 2017, O昀케ce for National Statistics, UK Data Service
North Carolina Department of Health & Human Service Data Sharing Guidebook, 2024,
NCDHHS and AISP
Open Data Handbook, 2024, Open Knowledge Foundation
Race and Ethnicity Data Guidebook, 2024, DC Mayor’s O昀케ce of Racial Equity
